PenARC researchers are part of a team awarded more than £2.4 million to understand common issues for people with more than one health condition and find solutions.
The CO-ACTION project brings together experts in nursing, allied health and medicine from four universities across the UK.
They will work with some of the estimated 7 million people living with multiple health conditions, alongside health and social care practitioners working to support them.
The five-year project, supported by funding from the National Institute for Health and Care Research, is led by researchers at the University of Southampton collaborating with PenARC, the University of Plymouth, the University of Manchester, and the University of Oxford.
In Plymouth, the project will involve PenARC members of the University of Plymouth Community and Primary Care Research Group (CPCRG) and the Peninsula Clinical Trials Unit (PenCTU). It will draw upon knowledge gleaned from recent projects that sought to enhance care for individuals with complex needs who had recently left prison, or been diagnosed with dementia or psychosis, and their unpaid carers.
The CPCRG specialises in developing complex interventions for underserved groups and works with the PenCTU to evaluate effects.
Professor Richard Byng, PenARC Deputy Director, CPCRG Lead and practising GP in Plymouth, said:
“People with multiple health conditions and their carers have complex issues that often cut across their emotional, physical and cognitive needs. That can pose real challenges for health professionals when it comes to delivering personalised care, as every individual’s needs will be slightly different. This project will help us understand the experiences of people with a wide range of conditions, and enable us to develop a more informed, individualised and evidence-based means of supporting them now and in the future.”
The CO-ACTION project is being launched when the UK’s health and care system is largely centred around treating one condition at a time.
That, combined with current care pressures, can compound the problems faced by people with multiple conditions, and lead to their social engagement, mobility and mental health and wellbeing being neglected.
To begin addressing that, the new project will see researchers in Plymouth – and their colleagues around the UK – working with patients, practitioners and community networks to explore the potential benefits and challenges of moving away from condition-specific care.
Among the possible solutions being considered would be to have a named person they can work with to develop a shared understanding of problems and strengths, create an individualised plan and turn to for personalised support.
This idea will be tested in a UK-wide trial involving 500 people, including people from Plymouth, who have often been under-served by health and social care (for example, people from low-income, ethnic minority, and non-English speaking groups).
If the approach works, the project team will explore how such an intervention can become a normal part of practice across the country.
Dr Hannah Wheat, PenARC Senior Research Fellow in Dementia Research, said:
“Through our previous research, we have seen first-hand how important it is for people with complex needs to have a single person who they can continue to turn to about all their health and care needs. For this relationship to work, there needs to be ongoing contact and an opportunity for trust to develop between the patient and the practitioner. When it does work, the individual’s entire care team can benefit from timely insights that prevent avoidable deterioration and crises occuring. While specialised knowledge is important, practitioners increasingly need to have the ability to support people with multiple health and social care needs.”