The IDEAL Programme comprises the largest studies of living well with dementia in Great Britain. The evidence collected will enable the development of new policy, interventions and initiatives to transform the lives of people with dementia and their carers.
The IDEAL Programme has been developed through two phases, IDEAL and IDEAL 2. Additional spin-off work focused on the impact of the COVID-19 pandemic on people living with dementia and their carers in the IDEAL COVID-19 Dementia Initiative and the linked INCLUDE study. The programme is supported by the ALWAYs group, an advisory group consisting of people with dementia and carers, who help to guide the research.
While the concept of ‘living well’ with the condition was prioritised in Government policy there was a need for a clear definition of what this really means and what might influence the ability of individuals and families to live well.
The IDEAL team used both quantitative methods (measuring things numerically) and qualitative methods (talking to people to get an in-depth understanding) to find out what supports or hinders the ability of people and their families to live well with any type of dementia or similar problems, and how this changes over time as dementia progresses. Researchers visited people with dementia and carers taking part in IDEAL when they first joined the study, and again one and two years later.
The evidence gathered by the IDEAL team suggested what kinds of changes could be made by individuals, families and communities to enable people to live well with dementia. IDEAL released recommendations and an action plan for social and health care purchasers, providers and planners, and advice and guidance for people with dementia or memory problems and those who support them. Access the IDEAL summary findings.
IDEAL was funded by ESRC and NIHR. INCLUDE was funded by ESRC.
IDEAL-2 builds on the unique resource of IDEAL, following the IDEAL participants for three further time-points to gain an understanding of their experiences over a total 6-year period as the condition progresses. The team are also conducting additional work to gather the perspectives of people from ‘seldom heard’ groups.
IDEAL-2 is funded by Alzheimer’s Society as a Centre of Excellence.
Brave New World – a song of hope about living with dementia
Impact of COVID-19 on 'Living Well' with Mild-to-Moderate Dementia in the Community: Findings from the IDEAL CohortDownload the Paper
Psychological Processes in Adapting to Dementia: Illness Representations Among the IDEAL CohortDownload the Paper
Living with dementia during the COVID-19 pandemic: coping and support needs of community-dwelling people with dementia and their family carers. Research findings from the IDEAL COVID-19 Dementia Initiative (IDEAL-CDI). Older People and Frailty Policy Research GroupDownload the Other
Living with dementia under COVID-19 restrictions: coping and support needs among people with dementia and carers from the IDEAL cohortDownload the Paper
The impact of auditory hallucinations on “living well” with dementia: Findings from the IDEAL programmeDownload the Paper
REPORT: Living with dementia during the COVID-19 pandemic: coping and support needs of community-dwelling people with dementia and their family carers. Research findings from the IDEAL COVID-19 Dementia Initiative (IDEAL-CDI)Download the Other
Relationship between self-perceptions of aging and ‘living well’ among people with mild-to-moderate dementia: Findings from the IDEAL Programme.Download the Paper
- Dr Cathy Charlwood, University of Exeter
- London School of Economics, Universities of Newcastle, Bangor, Bradford, Brunel, Cardiff, Kings College London, Sussex, Swansea
- Innovations in Dementia, RICE Centre Bath