Expertise
Child Health
Biography
I lead the research unit PenCRU, which undertakes a programme of applied health services research aimed at identifying ways to improve the health and wellbeing of disabled children and their families and seeks funding to carry out specific major research projects. The goals of PenCRU are consistent with the broader mission of PenARC, whilst being focused on childhood disability research. PenCRU involves families of disabled children as partners in all the activities of the unit through our Family Faculty. The vision for PenCRU is to work in partnership with families, clinicians and commissioners as the principal users of our research findings.
Publications
- Healthy Parent Carers: Acceptability and practicability of online delivery and learning through implementation by delivery partner organisations
- Improving continence in children and young people with neurodisability: a systematic review and survey
- Healthy Parent Carers programme: mixed methods process evaluation and refinement of a health promotion intervention
- Healthy Parent Carers: feasibility randomised controlled trial of a peer-led group-based health promotion intervention for parent carers of disabled children
- Implementation of training to improve communication with disabled children on the ward: a feasibility study.
- Communicating with disabled children and their families in hospital
- Public involvement in health research: what does ‘good’ look like in practice?
- Healthy Parent Carers peer-led group-based health promotion intervention for parent carers of disabled children: protocol for a feasibility study using a parallel group randomised controlled trial design
- Core Health Outcomes in Childhood Epilepsy (CHOICE): Development of a core outcome set using systematic review methods and a Delphi survey consensus
- Healthy Parent Carers programme: development and feasibility of a novel group-based health-promotion intervention
- Core Health Outcomes In Childhood Epilepsy (CHOICE): protocol for the selection of a core outcome set
- Improving communication between staff and disabled children in hospital wards: testing the feasibility of a training intervention developed through intervention mapping
- “Interventions utilising contact with people with disabilities to improve children’s attitudes towards disability: A systematic review and meta-analysis”
- Resources for parents raising a disabled child in the UK
- Rasch analysis of the Chedoke-McMaster Attitudes towards Children with Handicaps scale
- Measurement properties of multidimensional patient-reported outcome measures in neurodisability: a systematic review of evaluation studies
- Sleep positioning for children with cerebral palsy
- End-user involvement in a systematic review of quantitative and qualitative research of non-pharmacological interventions for attention deficit hyperactivity disorder (ADHD) delivered in school settings: reflections on the impacts and challenges.
- Children’s contact with people with disabilities and their attitudes towards disability: a cross-sectional study
- Non-pharmacological interventions for attention-deficit/hyperactivity disorder (ADHD) delivered in school settings: systematic reviews of quantitative and qualitative research
- Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.
- A Systematic Review of Generic Multidimensional Patient-Reported Outcome Measures for Children, Part II: Evaluation of Psychometric Performance of English-Language Versions in a General Population
- A Systematic Review of Generic Multidimensional Patient-Reported Outcome Measures for Children, Part I: Descriptive Characteristics
- Peer support for parents of disabled children part 2: how organizational and process factors influence shared experience in a one-to-one service, a qualitative study
- What are the benefits and costs of providing peer support to parents of disabled children
- Peer support for parents of disabled children part 1: perceived outcomes of a one-to-one service, a qualitative study.
- Involving disabled children and young people as partners in research: a systematic review
- Communicating with disabled children when inpatients: Barriers and facilitators identified by parents and professionals in a qualitative study
- The association between children’s contact with people with disabilities and their attitudes towards disability: a systematic review
- Towards a definition of neurodisability: a Delphi survey
- Meeting the Information Needs of Families of children with chronic health conditions
- Peer support for parents of children with chronic disabling conditions: a systematic review of quantitative and qualitative studies
- The experience of disabled children as inpatients: a structured review and synthesis of qualitative studies reporting the views of children, parents and professionals
- Sleep positioning for children with cerebral palsy (Protocol)
- Why it is crucial to involve families in all stages of childhood disability research
- Development of the Oxford ankle foot questionnaire: finding out how children are affected by foot and ankle problems